Skip to main content

So, everyone's going to get Libre on prescription on 1st November?!

In short, they're not. Nobody has them on prescription yet (edit 03/11/17 - almost nobody - there is some evidence that a few people might have them, but yet to be totally convinced). There are a small number that have persuaded their doctor/specialist to fund, but it's difficult to know exact circumstances and it hasn't been done in a coherent way.

The situation became different from 1st November, in that it is now possible to prescribe the Libre. However, the budgets are controlled by the local health authority (CCG) and ultimately they decide whether to fund or not and who to fund it for. There could be a chance that a GP/Specialist could go 'maverick' and prescribe without authority...but like current funding, will be rare and not coherently managed.

The problem the CCG have is two-fold. Firstly, budgets run from April to April. Starting funding in November means that they'll have to find extra cash from somewhere to fund the Libre - at least initially, it is going to cost more.

Secondly, and perhaps more importantly, there's not guidance from NICE about who should receive the Libre on prescription. There is limited health economic data and only a few large-scale trials.  Cost-effectiveness is yet to be proven any more than anecdotally.

As patients, our best bet for getting coherent funding of Libre is through patient groups like JDRF, Diabetes UK and Input. Rest assured they are working very hard to make Libre accessible to as many of the people that really need it as possible.

Speaking to doctors etc. may increase awareness, but as for funding across a wide area, the patient groups are the ones that are likely to make the biggest difference.

This information is gathered from my reading and speaking to interested parties, so if anyone has any other evidence or info, please share.

These two articles help:
http://www.inputdiabetes.org.uk/cgm/libre/ and http://www.inputdiabetes.org.uk/2017/10/access-flash/

Comments

PhilT said…
The case for NHS funding isn't black & white. Current user experiences are dominated by self selecting motivated users willing to fund themselves. The experiences of users on "free trials" or where NHS clinics apply the sensor to patients seem less clear cut.

The people with worst BG control are probably in denial or in some way impaired from getting on top of it, the Libre can give extra data but that doesn't help the data challenged.

Popular posts from this blog

Big Announcement - Libre Funding

NEWS RELEASE Embargoed 00:01 November 14 NHS TO PROVIDE LIFE CHANGING GLUCOSE MONITORS FOR TYPE 1 DIABETES PATIENTS Tens of thousands of people with Type 1 diabetes across the country will benefit from life changing glucose monitors on the NHS. To coincide with World Diabetes Day, Simon Stevens, Chief Executive of NHS England, is announcing action to end the current variation patients in some parts of the country are facing to access Freestyle Libre. The wearable sensor does away with the need for inconvenient and sometimes painful finger prick blood tests by relaying glucose levels to a smart phone or e-reader. NHS England will ensure the device, which is the size of a £2 coin and sits on the arm, is available on prescription for all patients who qualify for it in line with NHS clinical guidelines. From April 2019, these patients will be able to receive it on prescription from their local GP or diabetes team helping them to better manage their blood sugar levels. It comes as the NHS seeks t…

The CCG Project!

In order to find out the situation around the country for Libre prescribing now that the national policy has been published, I have made the decision to contact many of them to find out their plans.  I have arbitrarily chosen to contact all English CCGs that in December 2018 prescribed Libre via Primary Care to less than 5% of their population (and one specific request from a group member).  I had hoped this would be a small list, but there are 135 CCGs on the list.  I may have bitten off more than I can chew, but I'm committed to doing this and feeding back.  It worked before and hopefully this level of scrutiny will bring similar results.

Below is a screenshot of the base document I am sending to each of the CCGs - it has some fields that are merge fields, so don't worry about the brackets and codes in the document (I found a typo, which has now been corrected too)
The major piece of work with respect to this is finding the right person to contact.  However, I have some m…

NHS England Libre Policy

The NHS England policy for prescribing of Freestyle Libre has now been released.  There is a link to the document at the bottom of the page, but the key part of the policy can be viewed below.  Here is the Link to Policy