Skip to main content

Blogging Renaissance

So it seems everyone's doing it, they do it in cafes, on park benches, they do it with friends and they do it alone. Clearly, I'm talking about blogging. I did try it, over 10 years ago on this blog, when I was first diagnosed with T1 diabetes (diagnosis day post). Reading back over those musings is quite a moving experience showing how I coped back then with my recent diagnosis and how little I knew and was taught. The years have clearly shown progression somewhat along the lines of the Change Curve proposed by Elisabeth Kubler Ross.

I can see how I went through most of those phases, all lasting different amount of times, some fleeting, but others lasting far too long.  I'm not sure I see it as a definite progression, with elements of denial and anger returning even when those periods have passed.

 But that's quite enough management least for the time being!

So, thoughts turn what I can blog about - I guess keeping it related to personal experience is probably the way to go - perhaps people will empathise with what I say, perhaps agree and maybe even discover something about themselves that they weren't aware of.  The resumption of this blog arose from being invited to dinner with a group of influential diabetic bloggers, including Lydia who writes the excellent blog I've linked to and Lis Warren, hugely influential and inspirational in a range of fields including education, music and diabetes.  Talking to them, I realised how much of the community I was missing out on, but blogging had really passed me by (even though this blog started in 2007).  I also thought my life was far too boring for people to want to read my thoughts - perhaps I'm right, but just maybe...

I think most of my blogs will be about the Freestyle Libre system.  It is a life-changing piece of kit for managing diabetes and has been the source of endless discussions since its launch in October 2014.  My role as an administrator on the Freestyle Libre Facebook Group means that my thoughts are never far away from the system and helping others to make the most of it.  However, the end of that sentence, not the Libre itself, is the focus of this first renaissance of the blog...helping others...

Put your own life-jacket on first!

Much of my diabetic journey in the 10 years post-diagnosis has been about helping others.  I don't know what it is about it, it's just so fulfilling and immersing myself as part of the diabetic community has been the single key aspect that has enabled me to progress to the integration phase of the Change Curve.  The journey started back in 2007 on the Diabetes Daily forums and continued to present day activity with the Libre.  However, it wasn't until late 2016 that I received any formal training in managing my diabetes, when I attended a DAFNE course.  This was partly through choice and partly because I believed that I knew more than enough about how managed my condition.  I have to admit, though it pains me to do so, that the course did more to improve my diabetic control than the Libre or anything else in my 'dialife'.

So, was there anything ground-breaking?  Was there some magic that was taught during the course?  The answer was no (apart from a realisation that splitting Levemir to two doses is not just desirable, but essential).  What the course really enabled me to do was to take time for me - during that course, I didn't have time to think of helping others and had to focus on my diabetes and how I managed it.  It was a resetting of parameters and mindset.

So, the take-home message (to quote one of my lovely lecturers from many years ago) - is whatever your skills, knowledge and expertise, especially in the fascinating diabetes community, it is very important to forget the key person in the equation and that's yourself.  Sometimes, I prefer to help with other people's problems, rather than focusing on my own - it seems somewhat easier, more comfortable, less scary.  But actually, making sure you have your 'life-jacket' on first is important and taking time to reset and take stock may actually be highly beneficial.

More soon!


Popular posts from this blog

The CCG Project!

In order to find out the situation around the country for Libre prescribing now that the national policy has been published, I have made the decision to contact many of them to find out their plans.  I have arbitrarily chosen to contact all English CCGs that in December 2018 prescribed Libre via Primary Care to less than 5% of their population (and one specific request from a group member).  I had hoped this would be a small list, but there are 135 CCGs on the list.  I may have bitten off more than I can chew, but I'm committed to doing this and feeding back.  It worked before and hopefully this level of scrutiny will bring similar results. Below is a screenshot of the base document I am sending to each of the CCGs - it has some fields that are merge fields, so don't worry about the brackets and codes in the document (I found a typo, which has now been corrected too) .  The major piece of work with respect to this is finding the right person to contact.  However, I have s

Shut the stable door before....oops

One of my get well cards! On Tuesday 23rd April I was leading my wife's horse from the field. My daughter was behind with her horse (we're honestly not that posh.. We do all the work ourselves and do it cost effectively.). A third horse decided it didn't want to be left in the field, so pushed past and frightened the horse I was leading. It bolted and ran straight into me, fracturing my tibial plateau. (the part of the tibia bone just below the knee). The next day, I was operated on under GA to permanently pin/plate the knee area back together. See x-rays below for what they did. Continued below, but in case you don't want to keep reading, here is the current situation as of 1st June I'm still at least four weeks off being able to bend my leg, but am basically OK.  Claire has all-but had her diagnosis of early-onset rheumatoid arthritis.  Not great, but hopefully treatment will start soon. of 5th June, I'm now able to bend the leg and put f

August Libre Update - Data, data and more data!

This month's update will be dealt with in two parts, both focusing on data; the first part summarising some data about the prescribing policies across England, the second my usual update on prescriptions fulfilled across the UK. Libre Prescribing Policies and Implementation in England There didn't seem to be an easy way to compile this.  I used the Diabetes UK Map  to link to the policies and then I cross-checked this with a Google search to see whether there was any more information.  I had to do this line by line for each of the 195 CCGs in England - quite a lengthy and tedious process.  However, I am pleased with the information arising from the data. Firstly, the headline figures - how many CCGs were funding Libre, how many had denied funding and who were still undecided?  There are differences of opinion about these figures as some CCGs have not been clear (Staffordshire CCGs), and some have agreed to fund, but are yet to actually fund due to implementation difficulti