Excuse me while I have a rant. As many of you know, I am quite a mild-mannered, quiet person who does not get easily riled. Well, I forgot to mention an incident a couple of weeks ago that really 'got my goat'!
It was to do with Josh's eyes. We finally lost patience waiting for an appointment to have tests on Josh's sight, so Claire went to our GP and explained the situation. He said the situation was unacceptable and immediately got on the phone and got us an appointment next day.
We went to the appointment the next day. Although the staff were mostly friendly, it was the worst appointment we had ever been to. Josh sat on Claire's need and they attached some electrodes to his head, which he absolutely hated. They flashed some lights at him. Went away for a chat, then put some more electrodes on and flashed some more lights. They then said that was all and bade us farewell, saying they would write to the eye person at our local hospital. At that point I said "Hang on a minute, can you tell me anything about the results?" They said, they thought it was developmental delay and he would almost certainly have perfect sight! As we know, due to his nystagmus this is impossible.
So what has happened is, they haven't read our notes, they couldn't be bothered to explain what they were doing and couldn't even be bothered to tell us the results without us pressing them. Claire and I are now even more distressed about his condition, especially as we hoped to get some clarity from this test (whatever it was!) and we discover we are no further on. There is an educational assessor coming from the council next week, who will assess Josh's needs and recommend ways forward. We also have an optometry appointment at our hospital in July. But the clock is ticking and we are still no closer to getting information about what Josh can see and whether there is anything we should be doing for him. Rant over!
It was to do with Josh's eyes. We finally lost patience waiting for an appointment to have tests on Josh's sight, so Claire went to our GP and explained the situation. He said the situation was unacceptable and immediately got on the phone and got us an appointment next day.
We went to the appointment the next day. Although the staff were mostly friendly, it was the worst appointment we had ever been to. Josh sat on Claire's need and they attached some electrodes to his head, which he absolutely hated. They flashed some lights at him. Went away for a chat, then put some more electrodes on and flashed some more lights. They then said that was all and bade us farewell, saying they would write to the eye person at our local hospital. At that point I said "Hang on a minute, can you tell me anything about the results?" They said, they thought it was developmental delay and he would almost certainly have perfect sight! As we know, due to his nystagmus this is impossible.
So what has happened is, they haven't read our notes, they couldn't be bothered to explain what they were doing and couldn't even be bothered to tell us the results without us pressing them. Claire and I are now even more distressed about his condition, especially as we hoped to get some clarity from this test (whatever it was!) and we discover we are no further on. There is an educational assessor coming from the council next week, who will assess Josh's needs and recommend ways forward. We also have an optometry appointment at our hospital in July. But the clock is ticking and we are still no closer to getting information about what Josh can see and whether there is anything we should be doing for him. Rant over!
Comments